Dementia and the Advance Directive - Lessons from the Bedside

von: Marcia Sokolowski

Springer-Verlag, 2018

ISBN: 9783319720838 , 147 Seiten

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Dementia and the Advance Directive - Lessons from the Bedside


 

Disclaimer

5

Preface

6

Acknowledgements

8

Contents

9

Chapter 1: Introduction

11

Setting the Stage

11

The Advance Directive

13

Alzheimer’s Dementia

16

Autonomy

17

Informed Consent

19

Precedent Autonomy

21

Substitute Decision-Making

23

Personhood

24

Sources

25

Chapter 2: Mr. Black

27

Mr. Black

27

Discussion and Analyses

29

Why Did This Case Present Little, If Any, Moral Distress or Ethical Concern?

29

So Whose View Is “Right?”

33

Further Issues with Mr. Black’s Case

36

Concluding Remarks

51

Sources

54

Chapter 3: Mrs. Black

55

Mrs. Black

55

Discussion and Analyses

59

Did Mrs. Black’s Advance Directive Meet the Criteria of Informed Consent?

60

In What Way Is Mrs. Black’s “Happiness” Relevant?

64

What Should We Do Given That The Post-Dementia Wishes, Values or Interests of Mrs. Black Seemed to Conflict with Those of Her Advance Directive?

64

Additional Issues

76

Standards of Disclosure

76

The Context of Long-Term Care

78

Is the Advance Directive Even Relevant?

80

Concluding Remarks

83

Sources

91

Chapter 4: Mr. White

94

Mr. White

94

Discussion and Analyses

98

Did Mr. White’s Advance Directive Meet The Criteria of Informed Consent?

98

Was Mr. White capable to make an informed decision regarding the feeding tube treatment?

101

Additional Ethical Issues

110

Given this scenario, would the physician’s pursuant actions have been morally justifiable?

111

What would have happened if Mr. White’s current wishes were considered incapable?

116

Is a feeding tube a heroic measure and/or an intervention that defies a death with dignity?

117

Did the SDM contribute value to the advance directive in this case? Does it more generally?

119

Concluding Remarks

126

Sources

129

Chapter 5: Conclusions

131

Source

135

Chapter 6: Recommendations

136

Clinical Recommendations

136

Policy Recommendations

138

Appendix

139

Ontario’s Health Care Consent Act, 1996

139

Purposes

139

Consent to Treatment

140

No Treatment Without Consent

140

Elements of Consent

140

Informed Consent

140

Same

141

Capacity

141

Capacity Depends on Treatment

141

Capacity Depends on Time

141

Principles for Giving or Refusing Consent

141

Best Interests

142

Index

143